A Long Awaited Update

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Maelroth
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A Long Awaited Update

Post by Maelroth » Wed Sep 16, 2009 1:12 pm

I have not forgotten that everyone here is wanting to know how things are for us. Well.... let's see, where to start #-o
I know! We had gone to UCLA on the weekend of the 4th July and they sent us home after saying that the spot was not bigger and tho it was important to get it taken care of soon it was not life threatening. OK, Ucla drops the case and no orders for care are written, Regular Doc's office thinks UCLA is taking care of it so no care orders are issued. 2 months go by no word from anyone. Wife has seizures for the first time Wed. before Labor Day weekend. We spend all night in E.R. waiting for a bed and wife's doc to be available, Doc shows up after 20 hrs. He was on call at our hospital when my wife came in and no one told him. As soon as he found out what was going on and talked to us my wife was on her way to Cedar-Sinai hospital (much better than UCLA =D> )

Drac got to stay in the hopital from that Wed to the next Thurs. afternoon, I stayed down there almost the entire time (ihad to drive the kids back and forth to visit) she beat my stay by one day and she got to go to L.A. to do it ;) :lol: . She had a cranial angiogram and they embolized her "spot" (AVM) they will be doing it again soon because the first was only 40% effective and they want to try to get it more under control before we talk about the Gamma Knife procedure. That will treat the over all problem tho results can take up to 3 yrs. to fully recover.

The hardest part for her tho is the almost total dependance she has to have on others, she can no longer drive or go anywhere unescorted and is currently still having symptoms (no seizures [-o< ) vertigo blackouts memory failure still dealing with

Thanks for all the prayers and energies
M [-o<
Not all who wander are lost-Tolkien



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davisherm
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Re: A Long Awaited Update

Post by davisherm » Wed Sep 16, 2009 1:39 pm

I'm so glad to hear she's still chugging despite the apparent idiocy of the medicos. My thoughts and prayers are with you and your family. Glad you're holding up with everything going on. I'm sending everything I can to you guys tonight.

We love you guys and if there's anything at all we can do for you, don't hesitate to ask.
"I just want to play on my Panpipes..." Cake

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Re: A Long Awaited Update

Post by white_harmony » Wed Sep 16, 2009 1:42 pm

Glad to see you're all still pulling through! My thoughts and blessings are still with you guys :hug:
~ The mystery of love is greater than the mystery of death ~

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Re: A Long Awaited Update

Post by Willow » Thu Sep 17, 2009 11:09 am

Thanks for the update, and blessings and thoughts your way.
Be who you are and say what you feel, because those who mind don't matter and those who matter don't mind.
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Re: A Long Awaited Update

Post by Crazy Healer Lady » Fri Sep 18, 2009 12:39 am

Many blessings and prayers sent toward you guys. Thank you for updating, and I am glad she is all right. I hope she feels a little more stable soon, and gets some independence back sooner than later. Let her know our thoughts are with her. :hug: And like Davish said, if there is anything you need, holler!
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Maelroth
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Re: A Long Awaited Update

Post by Maelroth » Fri Sep 18, 2009 12:14 pm

thanks guys, we go to the neuro-clinic down there on the 24th this mo. to discuss the next procedure and see how well things have gone so far.

again we thank everyone for their prayers.

nobody wants her healed more than i do [-o< \:D/ this stuff is gonna drive me crazy ](*,) (i know,i know its a short drive :-D )
i'll let everyone know more when i do. :hug:
Not all who wander are lost-Tolkien



Religion is like a finger pointing to the moon, we must not get so involved in the finger that we forget where it points.



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Re: A Long Awaited Update

Post by Maelroth » Mon Oct 19, 2009 1:41 pm

Well, I'm back again to add to our update. Let's see, we went to the appt. on sept. 24 and they said it was going to be needed to embolize it some more so that Draconia will have a higher possible success rate for the Gamma Knife procedure to cure it quicker. \:D/ She has just started to get over the effects of the first procedure. They would have done it this last Thurs. but they had the go ahead for the oper. they didn't get the hospital stay approval yet and that could take a week or so longer. ](*,)

As for other events,..... :-( we're homeless again. Seems that friends just aren't what we thought thet were.
As of yesterday our High Priestess (ex) whom we had been staying with and contributing to their survival (group efforts) has decided that because of some unfortunate occurences last week, that we are no longer welcome at her house. So we got "asked to leave" asap. So I come to you today from the free internet from our motel.

We will as always persevere? and roll on best we can. I shall try to get back here and let folks know more as always.

We will always be grateful for the thoughts and prayers of our family here.

Always with love and light for all, M
Not all who wander are lost-Tolkien



Religion is like a finger pointing to the moon, we must not get so involved in the finger that we forget where it points.



Maelroth B*B!

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Re: A Long Awaited Update

Post by white_harmony » Mon Oct 19, 2009 1:54 pm

Sadly, you're right. Friendship just doesn't mean what it used to ... To certain kinds of people anyway, friends seem to be more like a convenience rather than having a true platonic relationship these days. I can certainly understand just what that's like. It's a pity I live all the way on the other side of the world from you guys. Were I in your area, my door would definitely be open.

:hug:

Glad the tests and procedures are all going well for Drac.

Keeping you all in my thoughts and blessings >:D<
~ The mystery of love is greater than the mystery of death ~

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Re: A Long Awaited Update

Post by Kystar » Mon Oct 19, 2009 5:41 pm

:GHug:
You say "Witch" like it's a bad thing!

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Re: A Long Awaited Update

Post by Maelroth » Tue Oct 20, 2009 8:25 am

I don't know how well things are going over there for ya'll down under. WH but if we were closer to each other I could at least hug ya for your generous offer. I wish we were closer cause the wife and I have always said we'd like to live there instead of here. You folks are the greatest (everyone here) and I hope that if the situation were reversed and there were something we could do for any of ya'll, you can believe we would be there for anyone and do our unconditional best to help.

I may not have met anyone personally from here but I feel that we know ya'll well enough to say that "Family is Family"
(me casa es su casa, if we had one)

I love and think about you all, all the time. M. >:D<
Not all who wander are lost-Tolkien



Religion is like a finger pointing to the moon, we must not get so involved in the finger that we forget where it points.



Maelroth B*B!

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Re: A Long Awaited Update

Post by Maelroth » Thu Oct 22, 2009 10:59 am

I am a self-diagnosed redneck and like any good redneck when I start a fairy-tale I start it with " Ya'll ain't gonna believe this S#!%" :-D :lol: :lol: :lol: ;)

Today we got a call from the owner of a complex where we had just applied for a 4 bdrm house (really tiny..but =D> )
He said we could have it!!!!!! =D> =D> =D> =D> \:D/ \:D/ \:D/ \:D/ he's going to get it ready and we can move in as soon as we get the money up (850+500 dep.) the 850 includes everything except phone, cable and internet. No other bills to worry about, just 1 payment a month. \:D/ \:D/ \:D/ \:D/ this comes to us in less than 24hrs.

Now, for the other half, We get back to the motel and there is a deputy (sheriff) waiting to serve me with a restraining order from our former housemate(& ex high preistess) saying they fear retribution from us. :badgrin: :badgrin: #-o :-k :-? :-) ..... :-D what? She should be worried about KARMA biting her in the ---. I , nor any of my people will ever take a negative action against these people. The Gods provide for those who are patient and faithful and I full well believe in letting the Three fold law come down and be served appropriately. outtahere: Karma Be Served so say I

Now we can go back to facing the med problems with all our focus and energy.
there isn't any news yet but at least now I can get back to chasing the doctors around :axe:
Blessed Be All, Thank you for being here and praying for us, we lovingly do the same for you all :GHug: M
Not all who wander are lost-Tolkien



Religion is like a finger pointing to the moon, we must not get so involved in the finger that we forget where it points.



Maelroth B*B!

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Re: A Long Awaited Update

Post by white_harmony » Thu Oct 22, 2009 1:41 pm

That's wonderful news!! About the house that is. As for the ex housemate ... I'm laughing like a loon about that lol. Some people just got no idea ... lol :lol: Go get them doctors hun mwahaha :lol:
~ The mystery of love is greater than the mystery of death ~

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Re: A Long Awaited Update

Post by Crazy Healer Lady » Fri Oct 23, 2009 8:48 am

Hurrah on the house! That's fantastic! Good luch chasing those docs. They need a swift kick sometimes
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The purpose of a relationship is not to have another who might complete you, but to have another with whom you might share your completeness. -CWG

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Re: A Long Awaited Update

Post by FyreGarnet » Fri Dec 11, 2009 12:27 pm

Wow. I can't believe that this all has happened to you. You guys just can't seem to get a break. I really hope that everything works out, especially with the house. Make sure those doctors take care of Drac for us!!

FyreGarnet
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